SAKKS, Supporting Aussie Kids with Kabuki Syndrome, is a voice for Kabuki Syndrome, and if you are visiting for the first time because your child has been recently diagnosed with Kabuki Syndrome, know that you are not alone.
Welcome to SAKKS
Kabuki Syndrome is rare, and a difficult journey for our parents, remember, a diagnosis gives answer to the symptoms your child experiences, not the person your child is or will become.
Every parent will deal with a diagnosis differently, and even though Kabuki Syndrome is a relatively new syndrome, Geneticists and Counsellors have heard of the Syndrome and can offer support. Many General Practitioners aren’t usually aware of Kabuki Syndrome, however they are always keen to learn more, as are other health care providers, and we offer plenty of information on our site to assist with this.
To help support those affected by Kabuki Syndrome, we, (Peta and Adrian), created this website in 2004. We hope to offer comfort and support to other families just like ours. By joining our membership you will receive the latest information, newsletters and contact with other parents.
Who is SAKKS?
To support the siblings of children with KS giving an opportunity to talk with other siblings in similar situations.